About Us

Mission Statement

PWSA of OHIO is a chapter of PWSA-USA and is a non-profit, tax-exempt organization dedicated to providing understanding and awareness of Prader-Willi syndrome, to supporting affected persons and families, to improving the quality of their lives, and to encouraging research into the causes, management, and cure of Prader-Willi syndrome.

Organization Structure

The organization is maintained by volunteers, mainly being parents of PWS children and adults dedicated to enriching the lives of their children. Officers include President, Vice-President, Secretary and Treasurer. The Board of Directors shall consist of seven members and four officers elected by and from the membership at large. The term of Officers shall be two years. The term of directors shall be 3 years.  Elections are generally held on October and the new Board of Directors then begins their office on the first of January the following year. PWSA of OHIO is a member in good standing and a chapter under the National organization of PWSA-USA.  Our organization is also a member of the Ohio Association for Non-Profits and an Affiliate member of the ARC of OHIO.


State meetings are typically held twice a year, spring and fall.  Although the place for the meeting varies, the enthusiasm of the attendees remain constant. Information tables are displayed at each meeting which includes current handouts concerning Diet & Nutrition, Support and Ohio Resources. Professional speakers and topics vary with each meeting. Informal parent get-togethers maybe arranged by PWSA of OHIO at various times throughout the year and at various locations within Ohio.

Current Board Members

Stephen Fetsko – President

Sandy Giusti – Vice President

Lisa Comes – Secretary

Tom Giusti – Treasurer

Max Litke, Amy Stuckey, Pam Vogt – Trustees

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