Help support Ohio families impacted by PWS, raise awareness, and support medical research that brings us closer to helping those with, and effected by PWS.
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Newly Diagnosed?We are here to help. Call us at 330-723-0004, or send and email to firstname.lastname@example.org.
Kroger Shopping Helps Support PWSA of Ohio
- Families Getting Together Meeting
Date: December 12th, 2015
3:00 - 5:00
- *** Sibling Research Study
Case Western Reserve University
Sibling should be 18
Phone Call Interview (Any Location Welcome)
- PWSA of Ohio Fall Camp
Registration is OPEN
Date: October 16-18th
- More details... (Dates to be determined, list is subject to change)
What is Prader-Willi Syndrome?
Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one in every 12,000 to 15,000 births. The disorder develops in two stages. Infants have muscle weakness, feeding difficulties and poor growth. During childhood, this is replaced by an insatiable appetite, slow metabolism, behavioral problems, and learning difficulties. Severe, life-threatening obesity results if food intake is not strictly controlled.